Simple Partial Seizures?? TLE??
For the past six years now, I’ve had what I’ve always called “episodes” where I get the weirdest feeling in the entire world. The best I’ve been able to explain it is I feel like everything around me is moving so fast it’s in slow motion, my heart speeds up, and I am fully aware of what is going on around me. For the longest time I used to try and stop the episodes to no avail, but listening to music or jumping in the shower. But it got to the point where when they’d occur, I’d sit on my floor and start crying, and rocking. I remember having these episodes as a child, but they stopped before returning six years ago. Now they’ll happen a few times a day, or a handful of times a week, every few weeks. Not stopping for longer than two or three months at a time. Three years ago I started having migraines, in which I’d have auras and pass out-but I never had the physical pain of a migraine. I’d have auras, and then get really tired, and sometimes faint. I get these episodes a lot in the shower, and sometimes I’ll smell this horrible burnt egg-like smell, when there’s nothing there. Does this sound like simple partial seizures to anyone? Or am I really just crazy? Haha.
They do sound a lot like temporal lobe epilepsy. I suggest you go to your GP or doctors as soon as possible and they will tell you what is best for you to do next.
2012 Partners of People with Epilepsy Support Group Meetings
disabilityaware:
Held quarterly on Tuesdays in Toronto, ON, 6-8 pm: March 13, June 12, September 11, December 11. For more information you can visit epilepsytoronto.org.
Hey, I just wanted to know if any of your follows have temporal lobe epilepsy? I'd like to ask a couple of questions. Thanks!
National Walk for Epilepsy
thatstheday:
Every four minutes, a person in the US is diagnosed with epilepsy. In the time it takes you to read this post someone will hear the words, “it’s epilepsy.”
Please help to support my dear friend JLD as she participates in the 6th Annual Walk for Epilepsy in Washington, D.C. in March. Any donation will help, or if you are in the area you can volunteer to work the walk.
CLICK HERE TO GO TO JLD’S DONATION PAGE or here to find out more information
Please reblog and help me get the word out about the 6th Annual National Walk for Epilepsy!
i have JME as well and lamotrigine has kept me controlled since april. my doctor moved me up 25 mg every week up to 200 mg twice a day and i never ended up getting the rash. you just have to go up really slowly and make sure that you watch for signs. and if you weren't already aware lamotrigine doubles as a mood stabilizer, which is beneficial for me, but i'm not sure how it would affect people without mood disorders.
In regards to the question about lamotrigine, I can say that it successfully controlled my absence seizures until I just recently grew out of them, with no bad side effects. I just developed myoclonic seizures though, and it doesn't control those for me.
